All the Things Max Eden Gets Wrong About Students With Disabilities and IDEA.

We barely survived my son Jonah’s adolescence. One evening in Philadelphia’s 30th Street Station he pushed me so hard I fell to the ground and a woman leaned over and whispered in my ear, “that child has the devil in him.” When my husband took our four kids to a minor league baseball game, Jonah started stomping and yelling so angrily that park officials called security. One day in upstate New York where we rent …

Special Education Parents, Know Your Rights! (Part 2)

Last week I published a post called “Ten Lies That Parents Of Special Needs Kids Often Hear: Know Your Rights!” and suggested that we in the special needs community share information to better advocate for our children. During the past week I’ve received many questions and comments from parents who are doing their best to navigate what can be an overwhelming thicket of regulations and red tape as they struggle to secure necessary services for …

Ten Lies That Parents Of Special Needs Kids Often Hear: Know Your Rights!

When I speak to parents of children with disabilities, I often hear reports of Child Study Teams (those responsible, along with parents, for creating Individualized Education Plans or IEP’s) who pass along false information or undermine the critical role parents have in deciding on necessary services and appropriate placements.  I hear these reports from Latinx parents — some not completely comfortable with the English language and/or concerned about their immigration status — in low-income districts …

Waiting for Equity: Two Adults with Disabilities (My Son and His Best Friend) Are Caught In New Jersey’s Dysfunctional System.

My dear friend Susan Cohen recently wrote an article for the National Fragile X Foundation on the friendship of our sons, Julian and Jonah. She describes how they met at a sleepaway camp, enjoyed each other’s company (a rarity for our socially-averse boys, particularly mine), and, after a prod from a counselor and sustained parental intervention, have become best friends. This is a happy story that we hope will have a happy ending. For Julian …

Here’s A Leaked Memo From the NJ DOE’s Assistant Commissioner When She Directed Special Education in Asbury Park.

The memo below is from the New Jersey Department of Education’s Assistant Commissioner of Student Services, Carolyn Marano. It was written while she was Director of Special Education at Asbury Park Public Schools. In both positions she was hired by Lamont Repollet, first in his position as Superintendent of Asbury Park and then as NJ’s Education Commissioner. It all points to a disturbing pattern of leadership that undermines the academic trajectory of children with disabilities. This …

For Parents Advocating for a Child with Disabilities, Here’s the Golden Rule: If You Don’t Ask for It, You Won’t Get It!

I have a new piece out in New Jersey Family Magazine on advocating for your child with special needs. It starts here: My husband and I welcomed our son into the world with the calm conviction of experienced parents. Jonah was our fourth child, and we were pros at child rearing, fluent in the language of raising kids. Feeding schedule? Check. Separation anxiety? Check. Toilet training? Check. Education? Check. But Jonah isn’t typical. When he …

As A White, Privileged, Mom of a Child with Disabilities, I Want To Scream and Cry and Throw Things.

This post is by Liz Winslow, a school choice warrior and mom of three children, two of whom have special needs. Her work has previously appeared on NJLB here,  here. and here. Her post that describes Aaron’s issues is here. I want to share a few thoughts on this New Yorker piece on Georgia’s “separate and unequal special education system,” beyond the fact that I wanted to scream and cry and throw things when I read it. First, this quote …